Our latest collaboration is to looking at Fatigue and Physical function, working with Merck KGaA
What? We are looking to better understand the burden associated with MS symptoms, including fatigue, including fatigue and its effects on your physical function and any issues you have with day to day activities’
Why? The information you share will provide important insights on the experience of fatigue and and its effects on physical function. This, in turn will feed into the development and testing of new questionnaires that can improve how such impacts are measured in individuals with MS, internationally.
This means that you will not only be contributing to a study looking at the effects of MS on lives in the UK but also how this subject is looked into in the future.
How? Everyone on the MS Register will be given the chance to take part in this study beginning in September 2018. The study involves answering a set of questionnaires immediately, then at a few other intervals throughout the year, after one week, after 6 months and then at one year. Completing the surveys in this research requires approximately 40 minutes.
Win an iPad! As a token of appreciation to study participants, Merck are giving away four iPads. You will be automatically eligible to win one by completing this research, and your chances of winning increase with the number of assessments completed. Four draws will be made, during the research, and the winners will be notified at the end of the research next year.
Merck KGaA is a leading science and technology company in healthcare, life science and performance materials. Merck is currently developing an oral drug for treating MS, which is currently in phase II, which adds to two other drugs already available to patients.
The MS Register asks regular questionnaires so that we can start to build a picture of your MS over time. We also work with Researchers across the UK and wider and sometimes they ask us to ask you their own questionnaires. Requests to work with us are taken through a strict application and governance procedure and are only accepted if the projects are deemed to be a relevant and scientific research question.