In just under three months, over 3000 Register participants have answered the prognosis questionnaire on the UK MS Register website. With under a week to go, we are urging anyone who hasn’t already done so, to log on and answer this questionnaire on your views about prognosis and MS.
The questionnaire is in collaboration with colleagues from Southampton University who are asking your opinion on the idea of an on-line program that estimates long-term prognosis for people with MS. This study is asking whether, when and how this tool ought to be offered.
This high number of responses in such a short space if time is very impressive and demonstrates the utility of the Register as a research platform. Attempting to carry out this type of research study using more traditional means such as through MS clinics, MS groups or even post, would struggle to get this number of responses in this space of time. The responses come from people based across the UK which will go toward ensuring that the view points from people across the whole of the UK are taken into account.
So to all of our participants who have answered – thank you! And for those who haven’t, please log on and complete the questionnaire by the end of May.
Log on here: www.ukmsregister.org