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Your research starts here…

Blogs, Research

Work with the UK MS Register and use this ‘real world’ source of MS data to add vital evidence to your own MS research.

 

The Participant Portal

We have more than twelve years of deeply linked longitudinal and clinical data to help you with your MS Research.

Clinical

We work with more than 45 NHS sites across the UK. Data collected from consenting patients includes:

  • Demographics
  • EDSS Score
  • Onset Data
  • MS Type at Diagnosis
  • Confirmation of Diagnosis
  • MRI and Imaging
  • DMT Data Dosage, Route, Frequency, Side Effects
  • Disease Course
  • Diagnosis Method
  • Walking Assessment

How can we help you?

  • Disease register platform consultation
  • Education and training in real world data: datathons, academies, using statistical packages and linked data
  • Carry out your own modelling on over a decade’s worth of highly linked longitudinal data
  • Data hosting
  • Data linkage
  • Trusted research environment

Work With Us

Have a look at our research pages for more information and how to get in touch/apply to work with us: www.ukmsregister.org/Research

Working with the UK MS Register Carry out research on a million existing validated PROs collected over 12 years from more than 20,000 participants Deploy a questionnaire to an actively engaged population (and get 3000-5000 answers rapidly) Access an NHS clinical population of over 17,000 people with MS Collaborations with over 160 researchers and publications from the UKMSR featured in journals such as BRAIN, MSJ, Neurology, Lancet Regional Health Europe, BMJ Open and MSARD Ability to link to 3.1 million NHS inpatient, outpatient and GP data (Wales) Experience the power of big data and linkage in a secure environment

 

Or if you have a question, please email contact@ukmsregister.org

To get an idea of what is possible, why not view our publications so far  here.

 

 

MS-Selfie
Update from the MS Pregnancy Register