I’ve lived with MS for more than half my life, it’s now secondary progressive. When I was diagnosed back in the 1980s, aged 29, there weren’t any disease modifying therapies (DMTs). And no one really knew how many people had MS in the UK.
I was shocked we didn’t have that data. How could anyone plan services if we didn’t know this? Why wasn’t the true social and economic cost of MS known?
Now, thanks to the UK MS Register we know so much more.
Read the MS Society Blog pages here: “I hope the UK MS Register will speed up future discoveries”